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Finding my Feet

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  • With more than 10% of people worldwide suffering from some form of rare disease or related disability, almost every family, school, or workplace knows at least one person striving to find their feet and live a good life, despite unique daily challenges.

    Physically limiting rare diseases are not as rare as you might think, yet most people with them face daily unnecessary hurdles when navigating the world of the physically able.

    So, how can we be more inclusive, supportive, and helpful in meaningful and empowering ways?

    Its obvious that life can be tougher for anyone fighting through a rare disease. What isnt always obvious is how we can make a meaningful difference. Disability is so much more than just a physical limitation. It impacts a person on every level.

    When we want to show care and connect better with someone with these challenges, we need to know what this means.

    But how can we know what its really like until we travel a mile in their shoes?

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